• Cart$0.00
  • Log In
  • Cart
  • Checkout

Epilepsy Education Everywhere

  • Get Info
    • Facts & FAQ
      • The Facts
      • FAQ
    • What We Do
    • History of Epilepsy Timeline
    • Resources & Downloadables
    • Staff
      • Executive Director
      • Our Board of Directors
  • Get Connected
    • Calendar
    • Special Events
    • Survivor Stories
  • Get Involved
  • Media
    • News
    • Photos
    • Audio
    • Videos
  • Contact

Archive for: Survivor Stories

  • Follow us on Twitter
  • Join our Facebook Group
  • RSS

Adrian E.

this entry has 0 Comments/ in Survivor Stories / by admin
April 17, 2014

First diagnosed when he was 6, Adrian has enjoyed life as a native Southern Californian including going to the beach, family vacations, and driving, but things changed in his 20s when his seizures became harder to manage. His doctors told him he was now living with intractable epilepsy and brain surgery was not an option for him. As troublesome as the epilepsy was, he always found tools to help him live with his condition including riding the waves, building sand castles, and being an adult LEGO aficionado. He offers his knowledge about epilepsy to those seeking to learn more about it.

Savannah V.

this entry has 0 Comments/ in Survivor Stories / by admin
April 17, 2014

Just last year, on September 11, 2013, Savannah was diagnosed with Genetic Generalized Epilepsy at only 6 years old. She is at a very high risk for seizures and since going on Keppra has had none. Known as Lil Bit, she told her class all about Purple Day® and epilepsy. Her friends supported her by wearing purple loom bracelets. Besides making loom bracelets, Savannah enjoys fishing, running, salamander and worm hunting, arts/crafts, swinging on the swings, dancing, and listening to Elvis Presley.

Jonny B.

this entry has 0 Comments/ in Survivor Stories / by admin
April 17, 2014

Since being diagnosed with epilepsy in 2011, Jonny has been involved with epilepsy organizations. He was also an alcoholic and went through a dark period leading to a tragic suicide attempt. At the time, he didn’t want to accept the fact that he had epilepsy. Now 18 months sober, and having gone through a life changing journey with rehabilitation, he is not only grateful for his second chance in life, but for his three kids whom he continues to see while remaining involved with the epilepsy community. As Jonny states, “Epilepsy has changed my life for the good in me.”

Could This Be You?

this entry has 0 Comments/ in Survivor Stories / by admin
April 16, 2014

Do you have a story to tell? If so, just contact us.

Donate

Sign up for Amethyst

Latest News

  • Community Spotlight: Epilepsy Education EverywhereDecember 12, 2014 - 3:41 am
  • November is Epilepsy Awareness Month 2014November 3, 2014 - 3:14 am
  • New EEE WebsiteOctober 27, 2014 - 4:28 pm
  • 2014 Purple Proclamation Project Launched!October 27, 2014 - 4:15 pm
  • EEE Going to Sacramento for Purple Day® ResolutionOctober 27, 2014 - 4:11 pm
© Copyright - Epilepsy Education Everywhere - Website by Argeron - Privacy Policy
  • Send us Mail
  • Follow us on Twitter
  • Join our Facebook Group
  • Subscribe to our RSS Feed